My Diabetic Heart

Living with Congestive Heart Failure and Type 2 Diabetes

WELCOME TO My Diabetic Heart!

Type 2 Diabetes and Congestive Heart Failure are two common conditions that people are diagnosed with every day. Living with one of these conditions at any age is hard enough; imagine living with both at the age of 28. That's what this blog is all about. It's about my life with Type 2 Diabetes and CHF, and about showing that you can live a fulfilling life with each.

31
Jan

I Need Answers

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So, it’s been two weeks since I went through a grueling barrage of heart tests to try and determine why there’s been a decline in my ejection fraction and what the next course of action will be.  And, much to my dismay, I know as much now as I did going into those tests.  Meaning I still don’t know.  Meaning I’m still waiting for test results. And the waiting is driving me insane.  I need answers.  And I need them NOW!

I called the doctor’s office on Friday and left a message for them to call me back. I didn’t receive that call back.  I attempted to call again today and, again, got no where.  So, I’m going to give it another try in the morning.  And if I’m not successful this time, I’m simply going to get in my car, drive across town to the office, and demand answers in person.  I need to know what’s going on.  I need to know what we are going to do next.  Am I going to need surgery to implant a defibrillator in my chest?  I need answers.  And I need them NOW!

I’m trying to keep living my life while I wait, but this big dark cloud is looming overhead.  I’m trying to think positively about things and believe that everything will be OK.  But the negative thoughts in my mind are outweighing the positive at this point.  Every aspect of my life going forward is tied to this one thing.  I can’t really plan to do anything because I don’t know what’s going to happen with my heart.  I am in limbo.   And it sucks.

In the mean time, I’m stuck wearing this heart monitor that has become increasingly annoying in the past few days.  Apparently, I’ve had an allergic reaction to the adhesive and/or conductive gel on the electrodes, because there are big red welts on my chest where the electrodes were placed.  They hurt and itch like crazy, too.  Just lovely.  And I can’t tell you how many times I’ve had these blasted things rip off in the middle of the night.  Great way to wake up, let me tell you.  I sincerely hope it’s all worth it in the long run.   I guess time will tell.

For now, I need answers.  And I’m going to get them!

Filed under: Health, Heart, Rants
  1. on January 31st at 06:39 pm
    Cherise said:

    Mike-

    I hope you get answers soon! I’m praying for you:)

  2. on January 31st at 07:00 pm
    Sarah said:

    {{HUGS}} Mike. I know it’s frustrating for you. I hope you find you answers tomorrow.

  3. on January 31st at 07:32 pm
    k2 said:

    Mike –
    I know it’s frustrating and I’m sending lots of love and strength your way!
    HUGS
    Kelly

  4. on January 31st at 07:35 pm
    George said:

    Praying for answers and for His calm to engulf you while you wait.

  5. on January 31st at 07:52 pm
    Mike said:

    Cherise, Sarah, Kelly, and George,
    Thank you all so much. Lots of love.

  6. on January 31st at 07:54 pm
    Rachel said:

    I hope answers come soon. Trust me, I know waiting in order to figure out life’s next step sucks.

  7. on January 31st at 09:00 pm
    Raquel said:

    Sending you a big *hug* Mike…I hope you get the answers you so desperately need!

  8. on January 31st at 09:00 pm
    Jess said:

    i am so sorry, friend. uncertainty is so very hard. sending lots of love your way!

    and i’ve had allergic reactions to adhesive before. ouch!

  9. on February 1st at 08:29 am
    Kelly Booth said:

    I hate when these doctor’s offices don’t call us back. You should call them and tell them you are having an allergic reaction to the monitor and need to see the doctor ASAP – that should get you both in and some answers. I hope you find out something soon!

  10. on February 2nd at 03:50 pm
    Mike Hoskins said:

    Mike: I’m sorry to hear about this… know I’m a couple days late on the responses here, and hope you’ve gotten some answers by now. That’s ridiculous – they should at least have the common courtesy to give you a call back, regardless of the results. I have you in my thoughts, my friend.

  11. on February 3rd at 09:09 pm
    PrincessLadyBug said:

    I hope you’ve gotten some answers by now since I’m so slow in reading your update. If you have to keep wearing the electrodes you might try using something like Sureprep. I have an allergy to adhesives & when I need to wear a bandaid or something for more than a day, that’s what I use.

    http://www.medline.com/wound-skin-care/sureprep-no-sting/

    Keep us posted. ((((((Big hugs)))))) LY/MI

  12. on February 10th at 09:29 am
    Scott S said:

    Mike,

    Uncertainty is far worse from a psychological standpoint than having a definitive answer, so I can empathize with your current situation. I hope you will receive some clarity in terms of your situation very soon.

    Regards,
    Scott S



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My Diabetic Heart by Mike Durbin is licensed under a Creative Commons Attribution-NonCommercial-NoDerivs 3.0 United States License.

Featured Post

An Appointment Worth the Wait
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After nearly two months of waiting for the appointment, I finally got to see the cardiologist on Friday to review the results of the cardiac MRI, blood work, and 30 day heart monitor that I had to endure in an effort to determine why there had been a decline in the function of my heart and if I would need a defibrillator.

I woke up late and had to scramble to get ready and head out to the medical center on the other side of town.  Normally if I’m in a rush and stressed like that it shows up when the nurses check my blood pressure, etc.., but not this visit.  My BP was normal and by the time the doctor came in to see me, I was oddly peaceful.

To my relief, the doctor confirmed that the cardiac MRI  indicated that my ejection fraction is at 47%. That is in stark contrast to the 35% that previous tests had indicated. And since defibrillators generally aren’t prescribed for patients with ejection fractions over 36%, that means I will not need one.  The doctor stated that a normal ejection fraction is around 55%, and since mine is 47%, he considers the weakness of my heart muscle to be mild.  Since I’m already taking the best medications for treating congestive heart failure and improving heart strength, the doctor wants to continue with the regimen that I’m on now and see how things progress.

The results of the blood work done to check my potassium, iron, thyroid, etc… all came back within the normal ranges.  While I’m thankful that those results were good, they are also frustrating because we were hoping to find a treatable cause for the decline, like an iron overload or something like that.  Alas, there’s no evidence of that, and I’m really not going to spend much time dwelling on it.

There were a few points of interest on tapes from the heart monitor I wore for a month, but the doctor said they seemed to indicate normal elevations in heart rate that anyone can expect from time to time.  Nothing to really worry about.

I can’t begin to explain how glad I am to finally have some of the answers that I needed, and how thankful I am that the results from the tests were worth the grief I endured going through them.  And as frustrating as the wait has been, it’s been worth it.

As for that odd peaceful feeling I was feeling on Friday?  It’s still with me as I write this.  I’m more at peace with things now than I have been in a long time.  And, along with the improvement in how I’m feeling mentally, I’m also feeling better and stronger physically.  And that, my friends, is saying something.

And speaking of friends, I can’t begin to say how much I appreciate the love, support, good thoughts and prayers that I’ve received from everyone in the Diabetes Online Community over the last few months.  If there were any doubts in my mind as to whether I’m loved or not, they are long gone.  To all of you:  Thank You, and Lots of Love, my friends!

 

Popular Post

It’s OK to Need Help
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In previous blog posts and conversations over the last two years, I’ve made no bones about the fact that I’ve battled with bouts of depression and anxiety since I was diagnosed with congestive heart failure and type 2 diabetes.

The daily routines of medications, blood sugar testing, meal planning, and other related bullshit, combined with the constant worry of trying to figure out how to pay for all of those medications and testing supplies, are simply overwhelming at times.

Add to that all of the typical stuff that goes along with every day life, you know… work, bills, chores, relationships, etc… and you’ve got yourself a great big barrel of fun.

Then top that off with dealing with a loved one being diagnosed with stage 4 cancer and going through all of the activities and emotions that go along with that, and being forced to put a near 9 year relationship on hold while your best friend becomes the primary caregiver for that loved one, and that great big barrel of fun transforms into the biggest clusterf*#K you’ve ever seen.

It’s all enough to destroy someone mentally. And the extreme mental hurt quickly manifests into extreme physical hurt. And you eventually reach a point where you just can’t take it anymore, and feel like throwing the towel in.

As difficult as it is for me to admit, I reached that point in the early part of February.

And the hard part is that I know it didn’t have to happen. I had a little bottle of “happy” pills in my possession that my doctor had given me the month before. I just wasn’t able to take them immediately, because I was starting a new blood sugar medication and had to get through the side effects of it before starting the other medicine.

And then when it was time to start the Celexa, I kept putting it off and putting it off, because of the fear that I’d have the same problems with it that I had with similar drugs years before. When you’ve had a bad experience with medications, or anything for that matter, you tend to shy away from them. It’s perfectly normal to have those feelings.

Things finally reached a point in early February where I knew I needed help, and knew that I had to take the plunge into the world of anti-depressants and anti-anxiety medications again. And so, on the 21st of last month, I broke the seal on the prescription bottle, cut the little pill in half as the doctor had instructed, and jumped.

Tomorrow, March 21st, will mark a month since I started the medication, and I can honestly say that I’m glad I did. I’m not nearly as edgy as I had been, and feel quite mellow most of the time. And mellow is a good thing.

The moral of this story is this: It’s OK to need help; You just have to ask for it!

Recent Comments

Mike Hoskins

Thanks for being awesome, Mike! Not only was it very cool you let me borrow the pin, but it was great sitting and talking for a bit before getting back on the road. And Riley loved seeing you again! The pin on my collar did spark some conversation, too - so thanks, my friend!!

Kate

Yay Mike! Thanks for these links. Heading over to both blogs now!

Ashley

When I decided to keep blogging, I never thought I'd end up being able to help my favorite Jedi Master get on the lizard spit wagon but I'm so glad I was able to help. Love ya buddy.

Mike Hoskins

Thanks for the links to two such awesome people, Mike! Loved hearing all the cool diverse stories of how we got into the DOC, and seeing the wonderful personalities up close and personal whenever that chance arises! Great post, my friend.