So, you know that endocrinologist appointment that I was panicking over last week?  Well, I survived it.  In fact, it went better than I feared it might.  I do have some reservations about it, but I’ll get to those in a bit.  First, the good parts.

Doc D. is a young guy, maybe 34 years old at most.  I’m 31, so we’re close in age.  He was attentive, listened, and took the time to get to know me and my situation.  He asked a lot of questions and documented my responses as we went along.  I appreciated how thorough he was, and the fact that he took the time to process my information and put his recommendations in writing before he tried to explain his thinking behind them.

He revised my meal time insulin regimen, giving me a coverage plan that is more logical and better suited to my needs.  That should help a lot.  He left my Lantus and Victoza doses alone.   He also prescribed the oral type 2 drug Jardiance for me to try, and suggested that I add a coenzyme Q10 supplement to help strengthen my heart and increase my energy levels.

Doc D. also said he wants to check my pancreas output with a c-peptide test.  He was a bit surprised that I’d never had one.  And since he was ordering tests, I requested that he order GAD65, IA-2, and insulin auto-antibody tests while he was at it.  I practically begged my PCP to run those tests, but they were never done.  Now, they will be.  So, I have that bloodwork to look forward in two months.

He took his time and didn’t rush through the appointment.  That was huge in my mind.

And…. AND…. There was no mention of my weight at all.  Let that sink in for a second… The doctor did NOT focus on my weight at all.  I’m really not use to that.  I was honestly kind of shocked.

His focus was more on nutrition.  Eat better, the benefits will follow.  Hey, I agree with that logic.  I know it works.  But the means of getting there are where some of my reservations begin.

Doc D. is something of a paleo diet evangelist and strongly “encouraged” me to adopt that diet and to severely restrict my carb intake.  He wants me to give up a lot of things that I’m just not sure I’m willing to ditch completely.  I have a real problem with having to deprive myself of the things I love, and I have no desire to go back to starving myself like I did for months after I was diagnosed.  While the results at that point may have been beneficial for a while, it ultimately lead to a major crash and burnout.  I don’t need that again.  I’m willing and wanting to make some changes, but I’m not sure the paleo diet bible is one that I’m willing to thump.  And I’m certainly not going to be beaten over the head with it.

The other major reservation that I have concerns the drug Jardiance that I mentioned above.  I had never heard of it, but through some research I’ve learned that it’s basically Lilly’s version of Invokana.  It’s an oral type 2 drug that is supposed to help my body dump excess sugar when I take a leak.   I’ve heard mixed things about that class of drugs and I’m incredibly leery about starting it.

I have two issues with this.  One, yeast infections are listed as common side effect of this medication.  If you’ve read my story, you know that’s what lead to my diagnosis in December 2008.  It’s understandable that I wouldn’t want to venture down that road again.  Secondly, do I really need another medication on top of what I’m already taking to treat my diabetes?  I’m already taking Victoza, Humalog and Lantus.   I think that’s enough. And I’ll spare you a rant about the additional monthly cost of that medication and the CoQ10 supplement.

So overall, the appointment went well.  I have some strong reservations about some things, but there were some really positive things that came out of it.  I’ve got some clearly defined goals to work on as far as my A1C goes, a better insulin regimen, a new supplement that seems to be helping to boost my energy, and hopefully a doctor who will be the same at the next visit as he was at the first.  He listened, he was thorough, and didn’t leave me feeling judged.  I see him again in September.

Time will tell.

Published on 07/12/2015, by in Diabetes, Doctor Visits.

“Nobody expects the Spanish Inquisition! … Our chief weapon is surprise, surprise and fear.” – Monty Python’s Flying Circus

Monty Python's Spanish Inquisition

dcarerecord Call me Nobody.  I expect the endo-quisition.

Tomorrow morning I have my first appointment with an endocrinologist.  For the last six and a half years, the management of my type 2 diabetes has been overseen by my primary care doctor.  Due to some progression, changes that I want to make in my treatment regimen, and lack of knowledge on the doctor’s part, I’m switching to an endo.

When the idea of changing doctors first came up a couple of months ago, I was actually kind of excited and was looking forward to to working with someone new and getting a fresh perspective on things.

As I sit here now, working on the questionnaire that I have to complete for the appointment, I find myself filled with anxiety and fear.  Fear of the unknown.  What will this new doctor be like?  Will he be understanding of my situation and willing to work with me, or will he be dismissive and judgmental.  Lots of what ifs in my mind.  And lots of defensive responses forming to the judgment and criticism than I fear may be coming.

And if I’m being honest, I’m feeling some guilt and self loathing. It’s no secret that I’ve been struggling for month and haven’t been on top of things as I had been.  And all of the questions I’m responding to are painful reminders of that.  If I’m feeling like this now, how the hell am I going to get through the appointment with the endo tomorrow?

I hope I’m wrong.  I hope the doctor will be kind and understanding and everything else I need.  I hope I’m pleasantly surprised and my anxiety and fears will be for nothing.

But should the inquisition come, I hope I don’t completely lose my shit in that office.  I’m not holding my breath.

To be continued…

Published on 05/17/2015, by in Diabetes, Diabetes Blog Week.

Diabetes Blog Week, Day 7 – Topic: Continuing Connections.  The very first inspiration for Diabetes Blog Week was to help connect our blogging community, and that continues to be the most important reason it’s held every year.  So let’s help foster and continue those connections as we wrap up another Dblog Week.  Share a link to a new blog you’ve found or a new friend you’ve made.  Or pick a random blog off of the Participant’s List, check it out and share it with us.  Let’s take some time today to make new friends.

Well, here we are.  It’s the last day of the Sixth Annual Diabetes Blog Week, and the topic of the day is about sharing connections that have been made during the week.  Talking about new blogs discovered and friendships formed.

I’ve read so many great blogs this week, a number of which haven’t been around very long and haven’t participated in Diabetes Blog Week before.   And one such blog caught my attention early on.

The blog is The Trials of Type 2 Diabetes, and it’s written by fellow type 2 Brian Cohen.  Some in the Diabetes Online Community may know him better as Brian_BSC and as an active member and admin over at TuDiabetes.  While I had seen Brian’s name and writings during my occasional visits to TuDiabetes, I didn’t know much about him or his story, nor had I interacted with him.

I’m thankful to say that has changed this week, as I’ve had a chance to get to know Brian a little better through his new blog.  I admire his “take the bull by the horns” approach to getting stuff done when it comes to what’s best for his diabetes care.  I’m very much the same way.

I’m also quite impressed with Brian’s writing as well. This blog post, Changing the Misunderstanding of Type 2 Diabetes, is one of the best pieces that I’ve ever read on type 2 diabetes and the stigmas that surround it.  If you haven’t read it yet, take the time to do so, and then share it with everyone you know.

I look forward to reading more of Brian’s blog and getting to know him better as time goes on.  I wouldn’t mind meeting him in person at some point either.  He’s good people.  And someone I now consider a friend.

My hat’s off to all of you

As I wrap up my final post for Diabetes Blog Week 2015, I’d like to salute everyone who participated this year.

Simply put, I admire each and everyone of you. Every person and every blog, no matter the type, background, etc… is part of my life with diabetes, and my life is much richer as a result.

If I were to express admiration for any one set of things that every blogger has in common it would be for the strength and courage each person displays in opening their hearts and sharing his or her experiences in living with diabetes. It takes great strength and courage to open up and share things that may be perceived as a weakness in this world that is all too often uncaring and cruel.

And I would be remiss if I didn’t thank you all for inspiring me to do the same. If it weren’t for the inspiration I gained from reading the experiences of fellow PWD’s, My Diabetic Heart wouldn’t exist.

And finally, many thanks to Karen for hosting DBW again this year and to everyone who helped her organize it. It’s been great.

Lots of Love, my friends!