My Diabetic Heart

Living with Congestive Heart Failure and Type 2 Diabetes

WELCOME TO My Diabetic Heart!

Diabetes and Congestive Heart Failure are two common conditions that people are diagnosed with every day. Living with one of these conditions at any age is hard enough; imagine living with both at the age of 26. That's what this blog is all about. It's about my life with Type 2 Diabetes and CHF, and about showing that you can live a fulfilling life with each.

2
Mar

I’ll take the Migraines!

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For the last several years, I’ve dealt with Migraine Headaches on a fairly regular basis.  The intensity and duration has varied but they have always left me wiped out and wondering what the hell happened.  And save for some over the counter remedies, the migraines went untreated as far as drugs go, because I’ve never had good enough insurance or enough money on hand to be able to go to the doctor for help.

Well, things have changed a lot in my life, as anyone who reads this blog knows.  I have a little bit of money now, and thankfully have insurance to help cover the medical bills that I’ve had over the last year.  And that knowledge made my decision to finally try to do something about the Migraines all the more easier when I went to see my doctor at the end of January.

After talking to Dr. Cabe about the situation, she prescribed a medication called Topamax. Now, I had heard both good and bad things about this particular drug, but I was willing to give it a try to see if it would help me.  And boy was that ever a mistake.

In my case, I’ve found the side effects of Topamax to be far worse than Migraine Headaches that I’m trying to remedy.  I mean this shit has really messed me up.  Below are excerpts from www.relieve-migraine-headache.com on the side effects of Topamax.  The ones I’ve experienced are in bold.

“Topamax will slow you down, or make you feel like you’re in a fog. This includes slower reflexes, trouble thinking or concentrating, trouble thinking of the right word (and other speech problems), tiredness, poor coordination, and dizziness.

Topiramate may also cause tingling in your hands or feet, shakiness, depression, nausea, memory problems, and visual problems (such as double vision). It has also been known to bring on respiratory infections.

Some of the less common Topamax side effects include: pain (ie chest, leg), mood changes (ie aggression, restlessness), rash, body odour, appetite loss and weight loss, constipation, hearing loss, and menstrual disorders.” – http://www.relieve-migraine-headache.com/topamax-side-effects.html

In short, in just a months time, the side effects of this one medication have seriously impacted every aspect of my life.  I’m not the same person that I was before I started taking the medication, and more than one person has told me so.

So, all that being said, I called Dr. Cabe’s office Monday morning, and told them I was having a major problem with the Topamax, and I needed to stop taking it ASAP!  They were busy, and it took all day for me to hear back from them, but I got the response that I was wanting.  The doctor agreed that I should discontinue the medication, and provided instructions for weaning myself off of the medication.  They were as follows:

  1. Take 1 pill per day for 4 days.
  2. Skip a day, then take 1 pill.
  3. Skip 2 days, then take 1 pill.
  4. Skip 3 days, then take 1 pill,
  5. And then stop!
Apparently, you have to gradually stop taking this medication, because stopping suddenly can cause serious problems.  Fine, what ever it takes to get this shit out of my system is OK with me.  As I told the doctor, and everyone else I’ve talked to about this problem, given the choice between living with the migraines or dealing with the bullshit side effects of the Topamax: I’ll take the Migraines!
Filed under: Life, Medications, Rants
  1. on March 2nd at 08:14 am
    Twitted by rpederse said:

    [...] This post was Twitted by rpederse [...]

  2. on March 4th at 11:07 pm
    Andrea Roth said:

    OMG!! Okay, humor me by reading the following. As a partial naturalist/diabetic, one speicific book, “Natural Healing,” by Dr. & Mrs. Balch reads as follow:

    Eat and/or drink in tea “feverfew, ginkgo biloba extract, peppermint, rosemary, and wormwood [that] are effective in the treatment of migraine headaches.
    Feverfew helps to alleviate pain and ginkgo biloba enhances cerebral circulation.

    “A study on the herb feverfew conducted at the University of Nottingham found that participants got an average of 24 percent fewer migraines, and vomiting was reduced, with no side effects..

    “Avoid salt and acid-producing foods such as meat, cereal, bread, and grains. Also avoid fried foods and fatty and greasy foods. Omit from the diet dairy products, yellow cheese, and other cheeses that contain tyramine. Avoid the amino acids phenylalanine and tyramine, nitrites (preservatives found in hot dogs and luncheon meats), aspirin, and monosodium glutamate (MSG), a common seasoning.

    “Chocolates and citrus may precipate an attack.

    “Exercise is important. It also helps to massage the neck and back of the head daily.

    “Take hypoallergenic supplements only.

    “Eat small meals and eat between meals [snacks] to help stabilize wide swings in blood sugar that may precipitate a migraine. Include almonds, almond milk, watercress, parsley, fennel, garlic, cherries, and pineapple in the diet.”

  3. on May 6th at 03:06 pm
    Brenda W. said:

    Mike ( I know this is an old post) that sucks!!!

    I’m glad I read this though, in case my husband ever gets to the doctor over his migraines, I will make sure he doesn’t take that! Excedrine seems to work pretty well for him, and the one migraine I had it helped too.



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As most of you know by now, I’m an open book when it comes to talking about my life with type 2 diabetes and congestive heart failure.  I’m generally willing to talk about anything, because I believe there’s a chance that sharing what I know and live with may actually help someone else. And there’s always the benefit of being able to vent; that’s always a good thing.  As is bonding with my readers and the rest of the community.

With that being said, I’d like to open the floor (is there a floor in the blogosphere?) to questions from anyone reading my blog.  Do you have a question about type 2 diabetes or congestive heart failure, or some other question that you’re just chomping at the bit to ask me? You know, like general “get to know me” questions. This is your chance to get those questions answered.

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New Opportunities
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During the year and a half since I was diagnosed with type 2 diabetes, I’ve often said that I see that diagnosis as a blessing in disguise.  If it weren’t for my going to the doctor for diabetes related problems, the congestive heart failure wouldn’t have been found, and I probably wouldn’t be writing this post.  The fact that I am here is a blessing in and of itself, but there have been so many more.

My diagnosis lead me to the diabetic online community, and the awesome people, blogs, and other websites that make up the community.  And it lead to the creation of this blog, which has allowed me to share my story with people from all over the country, and even around the world.  This blog, and my interactions with others in the community, have lead to another opportunity, too.

Some of you may have seen my tweet last night that I had just submitted my first post for Blogabetes, and some inquired as to what that was all about.  Well, a while back, I was contacted by dLife and was extended an invitation to join their team of bloggers. I accepted, of course.  And now that the paperwork and setup is out of the way, I’m at the starting point of this new opportunity, and as excited as can be.

Now, don’t worry, My Diabetic Heart isn’t going anywhere;  I’m going to be blogging in both places.  I’m thankful to have been blessed with another opportunity, and to know that I’m definitely in someones good graces.

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