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Dexcom G5 Mobile transmitter and receiver

So, back in December, I had a chance to test drive a Dexcom continuous glucose monitor (CGM) through my Endocrinologist’s office.  I had been curious about the device and my Endo wanted to capture some data to get a better idea as to what adjustments we needed to make to my insulin dosages, etc… So, I met with the diabetes educator in the office, was trained and setup with the Dexcom, and then spent a week using it to track my numbers, insulin, carbs, exercise, etc…  It was a good experience overall, and I definitely saw the potential benefits using a Dexcom on a regular basis.  And I really wasn’t ready to give it back after a week.

In early March, after pondering the move for quite a while, I decided to explore whether I could get one or not.  I had questions.  Would my insurance even approve it? What would it cost? Could I afford another monthy expense?  Was this really something that I wanted?  So, I sent my information to Dexcom and they began the process of checking my insurance benefits.  I was eventually referred to Edgepark Medical Supplies as they are the third-party durable medical equipment distributor that my insurance prefers.  Edgepark provided a cost breakdown and gave me time to think things over while we waited for the insurance company to process the required prior authorization.

Dexcom G4 Platinum sensors

Cost breakdown
Dexcom G5 Mobile Transmitter – $984.60

Dexcom Receiver – $156.71

Dexcom G4 Platinum sensors – $319.20 ($106.40 per box of 4.  x 3 months).

Total out of pocket cost:  $1,460.52

As I said, I wasn’t sure if I actually wanted one of these things.  And the cost was definitely going to be a factor.  That total out of pocket cost was with the insurance.  My out of pocket deductible hadn’t been met, so I would have to bear the brunt of the cost up front.  I just didn’t know.  Lots to ponder.

Then, on April 10th, I received a voicemail that appeared to indicate the insurance had approved the Dexcom.   I returned the call to verify that and, to my amazement, the answer was yes.  And when the insurance company actually approves something on the first try, you have to strike while you can.  So, I placed order.  I still have reservations about the cost going forward, but I’ll figure that out later.

I received my order on Good Friday of all days, and have been using the Dexcom since Sunday evening.  The first 24 hours were a bit rough, but this is new and I’ll get used to it.  This is a good thing.

And the timing is perfect as I will have the Dexcom as I travel to Chicago tomorrow evening in preparation for the #2ruthInNumbers and #HealtheVoices17 conferences.  Learning on the go.

Ciao!

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Today is the 8th anniversary of my initial diagnosis with diabetes and congestive heart failure.  My, what a long and trying eight years it has been, too.  So much has happened since that fateful day. So many changes in my life, my diagnosis, and my treatments.

Change is so often hard to accept.  Admittedly, this last year has been a real struggle for me as I’ve worked to come to terms with my misdiagnosis and the changing of my label from type 2 diabetes to latent autoimmune diabetes in adults, or LADA.  On one hand, the change has been positive in that I’ve gained access to different treatment options, more supplies, etc… On the other hand, though, it has had the negative effect of leaving me without the sense of identity I had for 7 years, without the sense of belonging I once felt, and without much of the voice that once spoke through this blog and other places in the diabetes community .   And, as this year comes to a close, I find myself still searching for those things.  If only in my mind.

I am hopeful that the coming year will be better and that I’ll find the answers to the questions that keep my mind occupied.  That I’ll find peace.  I hope.

Eight years.

Wow, only eight years?  It feels like so much longer.  Alas, just eight years.  Eight years of knowing, caring, surviving, and sharing.

Eight years of knowing that I have a two invisible chronic illnesses for which there are no cures.  Eight years of knowing that I’m not alone in my fight.  That there are millions of others fighting the same things.  Eight years of getting to know some of the most amazing people around.  Lots of love to everyone in the Diabetes Online Community.

Eight years of caring more about my well being.  Eight years of doing everything I possibly could to beat the odds against me.  Eight years of caring for those around me, both online and offline.  Eight years of being me.

Eight years of surviving the many challenges before me.  Eight years of enduring the daily routines required to stay alive.  Eight years of painful medical procedures and tests to monitor changes both good and bad.

Eight years of sharing my story with the world.  Sharing both my victories and my defeats, showing what it’s really like to live with these conditions.  Sharing the message that it is possible to live well with both. And that there is no shame in being diagnosed with them.

You’ve surely noticed the repetition in this post by now, and you may very well be ready to leave it.  And, honestly, I really can’t blame you.  I’d love to leave it all behind too.  But I can’t.  That’s life with diabetes and congestive heart failure.

8years