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Published on 05/20/2016, by in Uncategorized.

The final topic for Diabetes Blog Week is about Diabetes Tips & Tricks.  The one I have to offer has to do with where I keep my medications and supplies now.

Since moving into my new apartment, I’ve taken to keeping all of the medications and supplies that I need every day in the kitchen, in the same large drawer where I keep the silverware.  I know it may seem an odd place, I’ll grant you that, but in my world it makes sense.  Here’s why.

The day starts in the kitchen with breakfast.  I have to open the silverware drawer to get utensils for eating.  But before I can eat, I need to check my fasting blood sugar, take a shot of Humalog to cover the meal I’m preparing, and take a shot of Victoza.  I also need to take all of my oral meds for my heart and other issues.  So, having all of that stuff right there in a place where I’ll see it at the start of each day serves as a reminder and helps me start the day off right.  And since I usually have a small meal before bed, I also keep my Lantus pen there as well, so I see it and remember to take it.  So far, it seems to be working for me.

diabetestip

 

For Our Families and Ourselves

As this week devoted to writing about life with diabetes comes to an end, I think it’s important to remember that there is so much more to our lives than just diabetes.  We are so much more than the disease with which we live.  I know all too well that when living with chronic health issues that require constant attention, it is easy to become so consumed by those thoughts that we lose sight of the fact that there’s more to life that just those health issues. Sure, they are always with us, but they should not be the center of attention all the time.  And it’s also important to remember that we, the people diagnosed with the disease, are not the only ones affected by it.  Our loved ones endure the struggles of the diagnosis as well.  They need and deserve our appreciation and support, too.  And so, I ask you to join me in pledging to remember these things going forward.

The Pledge

We, the undersigned, acknowledge and understand that we, as PWD’s, are not the only people affected by the disease with which we have been diagnosed. That our loved ones endure the struggles of this diagnosis along side us. We pledge to remember this, to show appreciation for their support, and to support them in return.

We, the undersigned acknowledge and understand that there is much more to life than diabetes and that it is important to take every opportunity to enjoy life in the moment. We pledge to stop and smell the roses and make memories, like the one above, as often as possible.

We, the undersigned, pledge to always remember the importance of making time for our families, and for ourselves.

Signed,

Mike Durbin. (And hopefully everyone else reading this.)

 


Today is the final day of Diabetes Blog Week. Click for the Tips and Tricks  Link List.
Let’s round out the week by sharing our best diabetes tips and diabetes tricks. From how you organize supplies to how you manage gear on the go/vacation (beach, or skiing, or whatever). From how you keep track of prescription numbers to how you remember to get your orders refilled. How about any “unconventional” diabetes practices, or ways to make diabetes work for YOU (not necessarily how the doctors say to do it!). There’s always something we can learn from each other. (Remember though, please no medical advice or dangerous suggestions.)

 
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Today’s topic about healthcare experiences comes at a time when I’m still trying to process the recent discovery that I was misdiagnosed with Type 2 diabetes, when what I actually have is Latent Autoimmune Diabetes in Adults, also known as Type 1.5 or LADA.  This after 7 years of struggles with treatments not working and being told I just need to try harder.  Bullshit that, based on test results that were present at diagnosis, could have been been avoided.  I’m sitting on a lot of anger about this.  Rightfully so.  But I don’t know how to express it in a way that’s not riddled with f-bombs. I dropped those yesterday, so I’ll spare you today.

Today, I’ll share wishes.  Wishes for my doctors. Wishes for the diabetes community.  And one for me.  The list is long.  Grab a snack, a Diet Coke, and bear with me.

Wishes for my Doctors

I wish my primary doctor had seen more than a young, fat guy, who fit her definition of a patient with Type 2 diabetes.  I wish she had seen the test results before her and used those to give a proper diagnosis.   I wish that she had seen that my case was beyond her abilities and that I needed to be sent to an endocrinologist much earlier than I was.

I wish my current Endo had joined my team earlier.  He discovered the misdiagnosis and confirmed that I have LADA.  He’s worked with me to find a better treatment regimen for my needs.  After 7 years of struggles, things are making sense.

I wish my doctors could see the bruises and scars on my stomach from all of the injections of Lantus, Humalog, and Victoza that I take each day.

I wish they could see the pained look on my face as the needles pierce my skin and the Lantus begins to burn.

I wish the doctors could see my frustrations as I sit down each week and sort out a dozen pills.

I wish they could see the looks of stress and strain on my face as I struggle to figure out how to pay for all of the medications and supplies. As I choose between buying medications, paying bills, and putting food on the table.

I wish the doctors could see the concern in April’s eyes when she knows I’m struggling with highs and lows.

I wish the doctors could see all of the external factors that impact my ability to manage well.

I wish the doctors could see the efforts I put into managing my diabetes each day. And see more good in my numbers than bad.

But what I hope my doctors never see, is me as just one more donor to their retirement funds.

Wishes for the Diabetes Community

A cure for diabetes would be AWEsome! And I’m not saying that just because it’s what everyone wants, or because I don’t want to live with the daily frustrations of living with diabetes.

No, I wish for a cure for the 6 week old baby girl who was born with type 1 diabetes, and will never know a life without the pain of multiple daily injections (MDIs) of insulin, frequent blood glucose checks, highs and lows, etc… unless a cure is found.

I wish for a cure for the man or woman who has lived with Type 1 diabetes for 40 years, who has never known a life without the ball and chain that is diabetes. I’d like for them to experience life without it, but that won’t happen without a cure.

I wish for a cure for all of my friends and loved ones living with Diabetes.

I wish for a cure for those who are in a lot worse shape than I am. As much as I dislike living with Diabetes, I’d rather see everyone else cured before me.

One last wish for Me

Now, I do have one last wish for myself.  You see, I have a heart of gold, but it’s rather weak physically, and doesn’t function as it should.  So, I wish for my heart to be as strong as my will to live, so that I may continue fighting for all of us, and have a long life that was well spent.


It’s day 4 of Diabetes Blog Week and the topic is The Healthcare Experience – Thursday 5/19 Click the link to see posts from others.
Most people who live with a chronic illness end up with a lot of experience when it comes to dealing with healthcare. How would you improve or change your healthcare experience? What would you like to see happening during medical visits with your healthcare team? How about when dealing with your health insurance companies? What’s your Healthcare Wish List or Biggest Frustration? Today is the day to share it all!

 
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Fuck Diabetes!  Yeah, I said it.  Someone needs to.  And after riding the Glucoaster all night following my 9 hours at work, I’m more than willing to do the job.  I feel like hell.  I’m incredibly tired.  I’m cranky. And I hate this disease.  F**k it and all of the misery that goes with it.

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And as for the “person with diabetes” versus “diabetic” labels thing… I don’t tend to get worked up over those. I respect that some folks do and I understand why.  Frankly, though, I much prefer Mike.


Click for the Language and Diabetes  Link List.
There is an old saying that states “Sticks and stones may break my bones, but words will never hurt me”. I’m willing to bet we’ve all disagreed with this at some point, and especially when it comes to diabetes. Many advocate for the importance of using non-stigmatizing, inclusive and non-judgmental language when speaking about or to people with diabetes. For some, they don’t care, others care passionately. Where do you stand when it comes to “person with diabetes” versus “diabetic”, or “checking” blood sugar versus “testing”, or any of the tons of other examples? Let’s explore the power of words, but please remember to keep things respectful.