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Today is the 8th anniversary of my initial diagnosis with diabetes and congestive heart failure.  My, what a long and trying eight years it has been, too.  So much has happened since that fateful day. So many changes in my life, my diagnosis, and my treatments.

Change is so often hard to accept.  Admittedly, this last year has been a real struggle for me as I’ve worked to come to terms with my misdiagnosis and the changing of my label from type 2 diabetes to latent autoimmune diabetes in adults, or LADA.  On one hand, the change has been positive in that I’ve gained access to different treatment options, more supplies, etc… On the other hand, though, it has had the negative effect of leaving me without the sense of identity I had for 7 years, without the sense of belonging I once felt, and without much of the voice that once spoke through this blog and other places in the diabetes community .   And, as this year comes to a close, I find myself still searching for those things.  If only in my mind.

I am hopeful that the coming year will be better and that I’ll find the answers to the questions that keep my mind occupied.  That I’ll find peace.  I hope.

Eight years.

Wow, only eight years?  It feels like so much longer.  Alas, just eight years.  Eight years of knowing, caring, surviving, and sharing.

Eight years of knowing that I have a two invisible chronic illnesses for which there are no cures.  Eight years of knowing that I’m not alone in my fight.  That there are millions of others fighting the same things.  Eight years of getting to know some of the most amazing people around.  Lots of love to everyone in the Diabetes Online Community.

Eight years of caring more about my well being.  Eight years of doing everything I possibly could to beat the odds against me.  Eight years of caring for those around me, both online and offline.  Eight years of being me.

Eight years of surviving the many challenges before me.  Eight years of enduring the daily routines required to stay alive.  Eight years of painful medical procedures and tests to monitor changes both good and bad.

Eight years of sharing my story with the world.  Sharing both my victories and my defeats, showing what it’s really like to live with these conditions.  Sharing the message that it is possible to live well with both. And that there is no shame in being diagnosed with them.

You’ve surely noticed the repetition in this post by now, and you may very well be ready to leave it.  And, honestly, I really can’t blame you.  I’d love to leave it all behind too.  But I can’t.  That’s life with diabetes and congestive heart failure.

8years

 
 
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Published on 05/20/2016, by in Uncategorized.

The final topic for Diabetes Blog Week is about Diabetes Tips & Tricks.  The one I have to offer has to do with where I keep my medications and supplies now.

Since moving into my new apartment, I’ve taken to keeping all of the medications and supplies that I need every day in the kitchen, in the same large drawer where I keep the silverware.  I know it may seem an odd place, I’ll grant you that, but in my world it makes sense.  Here’s why.

The day starts in the kitchen with breakfast.  I have to open the silverware drawer to get utensils for eating.  But before I can eat, I need to check my fasting blood sugar, take a shot of Humalog to cover the meal I’m preparing, and take a shot of Victoza.  I also need to take all of my oral meds for my heart and other issues.  So, having all of that stuff right there in a place where I’ll see it at the start of each day serves as a reminder and helps me start the day off right.  And since I usually have a small meal before bed, I also keep my Lantus pen there as well, so I see it and remember to take it.  So far, it seems to be working for me.

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For Our Families and Ourselves

As this week devoted to writing about life with diabetes comes to an end, I think it’s important to remember that there is so much more to our lives than just diabetes.  We are so much more than the disease with which we live.  I know all too well that when living with chronic health issues that require constant attention, it is easy to become so consumed by those thoughts that we lose sight of the fact that there’s more to life that just those health issues. Sure, they are always with us, but they should not be the center of attention all the time.  And it’s also important to remember that we, the people diagnosed with the disease, are not the only ones affected by it.  Our loved ones endure the struggles of the diagnosis as well.  They need and deserve our appreciation and support, too.  And so, I ask you to join me in pledging to remember these things going forward.

The Pledge

We, the undersigned, acknowledge and understand that we, as PWD’s, are not the only people affected by the disease with which we have been diagnosed. That our loved ones endure the struggles of this diagnosis along side us. We pledge to remember this, to show appreciation for their support, and to support them in return.

We, the undersigned acknowledge and understand that there is much more to life than diabetes and that it is important to take every opportunity to enjoy life in the moment. We pledge to stop and smell the roses and make memories, like the one above, as often as possible.

We, the undersigned, pledge to always remember the importance of making time for our families, and for ourselves.

Signed,

Mike Durbin. (And hopefully everyone else reading this.)

 


Today is the final day of Diabetes Blog Week. Click for the Tips and Tricks  Link List.
Let’s round out the week by sharing our best diabetes tips and diabetes tricks. From how you organize supplies to how you manage gear on the go/vacation (beach, or skiing, or whatever). From how you keep track of prescription numbers to how you remember to get your orders refilled. How about any “unconventional” diabetes practices, or ways to make diabetes work for YOU (not necessarily how the doctors say to do it!). There’s always something we can learn from each other. (Remember though, please no medical advice or dangerous suggestions.)